Rare disease education

Uncovering the common multi-system consequences of a rare disease – the multidisciplinary team

A podcast with Dr Danny Hsu, Haematologist and PNH expert and Surabhi Chaturvedi, Senior Haematology Psychotherapist, discussing the psychological burden of PNH, and strategies for multidisciplinary teams to support patients and their support networks.
This medical education session is intended for healthcare professionals only.
The podcast is an educational activity funded and produced by Sobi™

Uncovering the common multi-system consequences of a rare disease – cardiorespiratory disease

A podcast with Dr Alex Pike, Haematologist and PNH expert and Dr Jivendra Gosai, Cardiologist, expand on discussions around extra-haematological complications of PNH, addressing the impact on the cardiorespiratory system and role of cross-specialty care between haematologists and cardiologists.
This medical education session is intended for healthcare professionals only.
The podcast is an educational activity funded and produced by Sobi™

Uncovering the common multi-system consequences of a rare disease – chronic kidney disease

A podcast with Prof Elena Solomou, Haematologist and PNH expert and Prof Alberto Ortiz, Nephrologist provides an overview of PNH as a complex rare disease, explores the need for better understanding of extra-haematological complications, focusing on the impact on kidney disease and addresses ways to support cross-specialty care between haematologists and nephrologists.
This medical education session is intended for healthcare professionals only.
The podcast is an educational activity funded and produced by Sobi™