Rare disease education
Rare Disease Education is an educational initiative focused on raising awareness about the current challenges in rare diseases. Read more on, https://rarediseaseeducation.com/
Listen on:
Episodes
Dec 4, 2025
Dec 4, 2025
27 min
A podcast with Dr Danny Hsu, Haematologist and PNH expert and Surabhi Chaturvedi, Senior Haematology Psychotherapist, discussing the psychological burden of PNH, and strategies for multidisciplinary teams to support patients and their support networks.
This medical education session is intended for healthcare professionals only.
The podcast is an educational activity funded and produced by Sobi™
Jun 23, 2025
Jun 23, 2025
33 min
A podcast with Dr Alex Pike, Haematologist and PNH expert and Dr Jivendra Gosai, Cardiologist, expand on discussions around extra-haematological complications of PNH, addressing the impact on the cardiorespiratory system and role of cross-specialty care between haematologists and cardiologists.
This medical education session is intended for healthcare professionals only.
The podcast is an educational activity funded and produced by Sobi™
May 5, 2025
May 5, 2025
25 min
A podcast with Prof Elena Solomou, Haematologist and PNH expert and Prof Alberto Ortiz, Nephrologist provides an overview of PNH as a complex rare disease, explores the need for better understanding of extra-haematological complications, focusing on the impact on kidney disease and addresses ways to support cross-specialty care between haematologists and nephrologists.
This medical education session is intended for healthcare professionals only.
The podcast is an educational activity funded and produced by Sobi™